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NY diabetes database raises privacy concerns
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NY diabetes database raises privacy concerns
" The contents of this blog are for informational purposes only and should not be construed as medical advice or substitute for professional care. For medical emergencies, dial 911!"

"1. I think you are missing the point of opposition to this registry, as its entirely possible to have a registry in place while respecting patients' right to privacy, but the key is 1) a lack of disclosure that the test results are being seized 2) a lack of being able to opt-out of the registry (patients are only allowed to opt-out of receiving communications from the NYC Dept. of Health and Mental Hygiene (DOHMH), but their records are still being seized) and 3) in spite of the NYC DOHMH's assurances, medical identity theft is growing, and we need look no further than last year's huge loss by the Department of Veteran's Affairs to see how easily such losses can occur."

" for more details on this issue. There are links to examples where this is an issue."

"Again, the key here is entirely possible to have a registry in place while respecting patients' right to privacy, but the manner in which this was implemented was big brother at its worst."

"2. I should also add that the ability to track glycemic control does nothing to improve patient outcomes. For example, knowing A1c does not pay for regular care, including doctors visits, medicines, testing supplies, lab work, or patient education, nor does it enable patients who lack healthcare insurance to purchase it at an affordable price. In the grand scheme of things, justification of violating patient privacy has never been established, and it seems unlikely that it ever will be. The causes are complex, but do not justify violating personal privacy when reasonable means could have been taken to ensure patient privacy were ignored."

"3. This process of tracking the progress and development of NY citizens is quite ok, albeit for a few reasons that might have the patients feel like their losing their privacy. Patient consent and approval should be asked first before information about them can be stored in government databases. It's like having an ID without even knowing you had one."

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"The New York City diabetes database, created to track the growth
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